Improving Miscarriage Support in New Zealand
By
Sarah Thompson (with her permission)
Supervised by Dr. Vivienne Elizabeth and Professor Maureen Baker
Abstract
Approximately 1 in 4 pregnancies in New Zealand (NZ) end in miscarriage
(Personal communication with Carr, 2008). The experience of this is
subject to change and is born within a social and cultural construction
influenced by subjective feelings of what the pregnancy meant to the
individual; and the negotiation of this, social and medical ideas of
personhood, social acceptability of grief, and political influences
with regard to employment leave and the funding of support groups.
Through the pulling a-part of these differing factors I wished to consider
how each may be influenced and to provide possible policy recommendations
to improve upon the support and experience of miscarriage in NZ.
Introduction
That grief after a miscarriage occurs is
not a new phenomenon. There are a multitude of studies which show that
most women suffer some form of grief after a miscarriage (Athey & Spielvogel, 2000;
Beutel, Deckardt, & Von Rad, 1995; Boyce, Condon, & Ellwood,
2002; Lok, 2007). This grief may lead to depression, anxiety (Nanda,
Peloggia, Grimes, Lopez, & Nanda, 2007) and in the extreme, post
traumatic stress disorder (Lok, 2007). This research therefore does
not aim to show that which is already known, but instead aims to
highlight the differing social factors that contribute to the experience
of miscarriage and to consider the way parts of the social construction
of miscarriage may be manipulated so that the experience itself,
and the support offered may be improved. As the experience of pregnancy
is often viewed socially as one that follows a linear path to birth
I have followed a similar time line to develop the experience of
miscarriage – from first knowledge of pregnancy to the act
itself of miscarrying and the relations and experience of this which
follow.
Background
Statistics
Miscarriage in Australia and New Zealand (NZ) is defined as a pregnancy
that ends spontaneously before 20 weeks gestation (The Crown, 2007).
The World Health Organisation (WHO) defines miscarriage as being up
to 23 weeks of the pregnancy and 500 grams in weight (birth.com.au,
2009). Both definitions are medical and have an impact on the way a
miscarriage is perceived both socially and politically.
A large NZ population based study recently found that 1 in 3 NZ women had experienced a miscarriage within their lifetime (Fanslow, Silva, Whitehead, & Robinson, 2008). As miscarriage is not a notifiable event in NZ, and no national research has been conducted into the occurrence per known pregnancy, the statistics available are only estimates. As such, in NZ it is estimated that 1 in 4 known pregnancies end in miscarriage with approximately 21,083 pregnancies ending in miscarriage in the year ending March, 2008 (Personal communication with Carr, 2008).
Western countries such as Australia, and the United Kingdom report a similar occurrence of miscarriage estimated at 15-20% of known pregnancies (birth.com.au, 2009; The Miscarriage Association, 2008). 50 percent of miscarriages are as a result of chromosomal abnormality (Huisjes cited in Moulder, 2001) and the cause for the other 50 percent is largely unknown (Regan & Rai, 2000). Advanced maternal and paternal age (35 years of age +) have been strongly linked to an increased risk of miscarriage (de La Rochebrochard & Thonneau, 2002; Nybo Andersen, Wohlfahrt, & Christens, 2000). Maternal age as a risk factor is therefore especially noteworthy with the increasing age that women in industrialised nations are experiencing their first pregnancy. In NZ this is true for all ethnicities and especially pakeha women (Statistics New Zealand, 2004). In addition, as a result of the increase in use of technology to conceive (Cote-Arsenault & Freije, 2004), and the early knowledge of pregnancy (as a result of home pregnancy kits) it is expected that the rate of miscarriage will increase (Simmons, Singh, Maconochie, Doyle, & Green, 2006).
International studies conducted into other factors such as alcohol, caffeine and tobacco consumption; high body mass and work schedule, have generated conflicting results with various studies noting these factors as potential risk influencers and others discounting this (Coste, Job-Spira, & Fernandez, 1991; de La Rochebrochard & Thonneau, 2002; Wen, Shu, Jacobs Jr, & Brown, 2001). The impact of these factors is of significant importance to Maori with almost one in three Maori women considered overweight (Ministry of Health, 2004). In addition Maori are twice as likely to smoke tobacco than non-Maori (Ministry of Health, 2005) and have a higher incidence of alcohol consumption than non-Maori (Ministry of Health, 2007).
A recent NZ study has shown that intimate partner violence (IPV) is associated with the occurrence of miscarriage (Fanslow et al., 2008). Results showed that those in a violent relationship were 1.4 times more likely to have experienced a miscarriage than those who had never experienced violence from a partner (Fanslow et al., 2008). This study, the only one in NZ to be carried out, also found the occurrence of miscarriage differed across the population based on ethnicity. Maori women were most likely to have experienced a miscarriage, followed by European/Pakeha, Pacific women and Asian women (Fanslow et al., 2008).
In NZ, with an estimated one in three women having experienced a miscarriage and approximately 20, 000 pregnancies ending this year in miscarriage, miscarriage can be seen as an issue potentially affecting all sexually active women of child bearing age.
Medicalisation of Pregnancy
The medicalisation of pregnancy has changed
the experience of pregnancy itself. Prior to the medical management
of pregnancy, women came to know of their pregnancy through bodily
signs, such as a missed period and tender breasts (Layne, 2003a). These
bodily changes are now considered mere signs of a possible pregnancy
rather than definitive proof. With the aid of medical technology, women
can now know of their ‘chemical pregnancy’ from the day of their first
missed period via a self administered urine test, and with the use
of a sonogram to confirm a viable physical pregnancy women can also
experience the pregnancy visually, know the ‘babies’ sex,
hear the thud of its heart beat and be given a ‘photo’ of
their baby. All of this is possible well before fetal movement and
long before a mother holds her baby in her arms.
This early knowledge and visual stimuli has consequences in turn for miscarriage. The medicalised experience of pregnancy enables earlier parent-child bonding (Frost, Bradley, Levitas, Smith, & Garcia, 2007), and as a result, investment in the personhood of the foetus and the social process of identity creation is able to occur sooner (Layne, 2003a). As the majority of miscarriages occur in the early weeks of pregnancies, this early knowledge of pregnancy has enabled many women to experience a miscarriage of what may otherwise been experienced as simply a slightly heavier than usual period (Cecil, 1994; Layne, 2003a).
Expecting the best
Expectations of pregnancy are socially produced
and influenced by the interaction between a number of factors. Progress
in biomedicine, an emphasis on women’s choice and empowerment, and society’s
belief in the linear narrative that pregnancies end in live births,
all influence the social construction of the expectation for our
pregnancies. A major component of the loss incurred after a miscarriage
arises out of high expectations for the trajectory of the pregnancy
(Layne, 2003a). Through the belief in the power of biomedicine, the
over-reporting of low infant mortality rates (in conjunction with
the silence of women who have miscarried) (Cecil, 1994; Layne, 2003a),
and medicine’s success with “miracle babies”, there
is a society-wide belief in the progress of medicine and the idea
that if and when you choose to have a baby, you can (Layne, 1996).
Narratives of women who have miscarried highlight a strong cultural belief in the right to a live childbirth, and an expectation that their pregnancy should go smoothly (Simmons et al., 2006). Unfortunately, while progress has been made in some areas of biomedicine, miscarriage rates have varied little and biomedicine has been unable to keep up with the cultural norms and expectations that have grown along side medical practices (Layne, 1996; Simmons et al., 2006). Further to this, popular pregnancy books reinforce the idea that pregnancies follow a linear narrative (not unlike the expected linear progress of biomedicine) from conception to birth with discussions of unexpected outcomes being seconded to the rear of the book (Layne, 2003a). These ‘unexpected outcomes’ challenge a linear narrative of conception through to birth. It has also been noted that physicians are wary of discussing possible pregnancy complications, for example miscarriage, for fear of unnecessarily worrying their patients (Layne, 2003a). As a result, the shock of miscarriage is greater than if the prevalence of such an event was known (Letherby, 1993).
Bodily experience
Miscarriage can occur anytime between conception
and 20 weeks gestation (The Crown, 2007) as a result of chromosomal
abnormalities, maternal and/or paternal age at conception, health factors
or social influences such as IPV. Not all miscarriages will be complete
however and medical intervention may be required to perform an ERPC
(evacuation of the retained products of conception), commonly referred
to as a D&C.
There is debate as to the necessity of an ERPC and a recent World
Health Organisation (WHO) study suggests that both waiting for a
miscarriage to finish or having surgery are both appropriate options
and that the decision for either should be the woman’s (Nanda
et al., 2007).
Medical practitioners have been critiqued
however for not adequately preparing women for the actual bodily
event of a miscarriage (Moulder, 2001). The physical aspects may
involve a considerable amount of pain, differing levels of bleeding,
the passing of tissue and clots and in some instances an operation
(Lee & Slade, 1996; Moulder, 2001).
Many women talk of the polluting feeling that arises as a result of
the amount and lack of control of the blood and tissue which is expelled
(Moulder, 2001).
The hospital experience
Interactions with medical professionals play a defining role in the
miscarriage event (Moulder, 2001). This experience is shaped by the
dominant cultural norms within medical settings and a woman’s
identity is negotiated within this framework. The medical profession
has been historically shaped by males (Hartigan, 2001; National Coordinating
Group on Health Care Reform and Women, 2003) and it is this medical
knowledge that frames the care offered, and issues surrounding what
is a baby, and therefore who is a mother. Perceptions of medical staff
on what is considered a viable foetus influence this construction and
studies of hospital staff found that miscarriage was viewed as less
of a loss than that of a stillbirth (Stratton & Lloyd, 2008). Therefore,
what may be experienced as a death to a woman may not be considered
so by a doctor (Letherby, 1993). The material reflection of this is
seen with no birth or death certificate of the event, this lack of
documentation would seem to signify that a baby was never in existence.
Other aspects which contribute to the miscarriage experience include the sensitivity of treatment received. The emotional support offered within hospitals has been critiqued in a number of studies (Moulder, 2001; Wong, Crawford, Gask, & Grinyer, 2003). The medicalisation of the event over simplifies the complexity of miscarriage and “contributes to a sense that miscarriage is being trivialised and its seriousness for the woman denied” (Frost et al., 2007, 1005). In addition, where a woman is cared for within the hospital may have an impact on the event. Many women have reported feeling upset and uncomfortable when placed within a ward with other mothers whose pregnancies have resulted in a live birth (Tsartsara & Johnson, 2002).
Self-blame
Cultural norms surrounding the ideal (start
to) pregnancy, in combination with the western neo-liberal perception
of individual control, and meritocracy can lead to a woman shouldering
blame for her loss (Layne, 2003b). Pregnancy books that stress self-regulation
of alcohol and cigarette consumption, what foods a woman should or
should not consume, how much exercise should be undertaken and urge
control of stress levels, play a part in the notion that woman can
control the outcome of their pregnancies (Layne, 2003b; Wall, 2009).
The internalisation of this ideal start can lead to self-blame when
a “pregnancy
fails” despite the fact that miscarriage is largely out of
the control of the woman (Layne, 2003a; Simmons et al., 2006). It
is known that the provision of information on the causes of miscarriage
significantly reduces feelings of self-blame and personal responsibility
for the loss (Nikcevic, Tunkel, Kuczmierczyk, & Nicolaides, 1999)
and also assists in finding meaning in, and coping with, the miscarriage
experience (Athey & Spielvogel, 2000; Maker & Ogden, 2003).
Grief
Studies have shown that the grief experienced
after a miscarriage can be as substantial as that felt after the death
of any loved one (Stratton & Lloyd,
2008). This period of grieving varies with research outlining grief
symptoms enduring between one month (Lee & Slade, 1996) to two
years or more (Lok, 2007). Grief may also be felt around the anniversary
of the event, or the expected due date (Lok, 2007). This grief is
often experienced secretly, away from public view (Frost et al.,
2007) and is characterised by feelings of sadness, desire to discuss
the loss, yearning for the child, and a search for a meaningful explanation
(Beutel et al., 1995). Men also experience bereavement effects such
as loss, sadness, and feelings of hopelessness (Johnson & Puddifoot,
1996; Lok, 2007). Frost argues that the loss for men and women may
be further heightened as a result of shrinking family sizes and family
planning approaches that are more planned and controlled (2007).
How a miscarriage is viewed, experienced and managed, and how (and indeed, if) it is spoken of and expressed, may rest upon a wide range of social and cultural factors. A fundamental issue is likely to be the stage (pre- or post-partum) at which the foetus/baby is attributed with human status; this may vary widely across different cultures and at different periods in history (Cecil, 1996). The definition of when a foetus becomes a baby is hazy at best with no uniform definition in use. The concept of stillbirth, miscarriage or near death is socially constructed and thus not fixed (Lovell, 1997). The construction of the foetus as a baby is a product of a number of interactions such as technology, gifts, discourses and the media all of which construct people as parents and the foetus as a baby early in the pregnancy (Frost et al., 2007).
The acceptability of the grief over a miscarriage is shaped by cultural norms around what it is acceptable to grieve for, and how this grief may be socially shown. Implicated in this is the construction of what is, or is not a life. In contemporary Western society, it is often presumed that a death has not occurred when there has been no life - seen in patriarchal terms as a bounded body – separate from others, in conjunction with notions of identity which require a person to have lived in order to have created an identity that can be lost (Howarth, 2007). Yet the experience for many women is that of a life inside them. Miscarriage therefore may represent the loss of parental identity, the loss of life, and the loss of the future self whose identity may have been anticipated by the parents ( (Lok, 2007; Lovell, 1997).
The lack of ritual and the silence surrounding the miscarriage event would seem to show that within the social construction of bereavement, miscarriage is “at the bottom of the ‘bereavement heap’” (Lovell, 1997). While pregnancy loss may now be more visible, the constant claims of women are that the experience is still cloaked in silence (Layne, 2003a). This grief may be hard to claim as a result of the unclear status of the foetus at the time of death and the lack of social ritual may extend the grieving process. The divide between the grief the women feels and the lack of social recognition of the event leads to the incompatibility of meanings and lends to the problem (Letherby, 1993). Contributing to this miscommunication may be the lack of available language to communicate the event. Leclerc notes the difficulty in finding the words to express the simultaneous feelings relating to birth and death, and the death of what may be considered by many never a life (cited in Cecil, 1996). This, along with the discrepancy between the experience of the individual and the understanding of the event by others, may mean those mourning are at odds with their social milieu and thus have to rely solely on their own coping mechanisms (Fowlkes, 1991 in Malacrida, 1999). This isolation can result in intensified and complicated mourning (Rando, 1984, 1992, 1993 cited in Malacrida, 1999).
CURRENT SUPPORT
Hospitals
The need for formal support and more sensitive care for those who have
experienced a miscarriage has been conclusively shown (Evans, Lloyd,
Considine, & Hancock, 2002; Lok, 2007). Researchers have suggested
that perceptions of unsatisfactory care contribute to women’s
distress after the experience of a miscarriage (Evans et al., 2002;
Lee & Slade, 1996; Stratton & Lloyd, 2008; Thorstensen, 2000).
In spite of this, and the high number of women who experience a miscarriage
each year in NZ (20,000 plus), there is currently no formal protocol
at the national level in order to ensure satisfactory care and support
within NZ hospitals (Ministry of Health, 2008). In addition, while
a number of DHBs surveyed provide counselling support via social work
departments, many of the 21 DHB’s do not have formalised pregnancy
loss services (Perinatal and Maternal Mortality Review Committee, 2007).
As outlined in a recent review of maternity services in the Wellington area (published by the MOH), “maternity services in New Zealand have been accorded a relatively low priority” (Ministry of Health, 2008, 9). The review highlights the need within maternity care for common-evidence-based standards to “which all relevant health professional groups subscribe” (Ministry of Health, 2008, 9). Such maternity care standards were produced in June 2008 by the United Kingdom Colleges of Obstetricians and Gynaecologists, Midwives, Anaesthetists and Paediatrics. While the Wellington review fails to mention miscarriage services, it does, however, state that the Maternity Care Standards outlined recently in the UK would provide an excellent template for New Zealand (Ministry of Health, 2008). The UK standards acknowledged that pregnancy loss can be extremely traumatic and the need for support for women and their families “both during the acute time of the event and continuing through the weeks or months afterwards” is highlighted (Royal College of Obstetricians and Gynaecologists, 2008, 48).
At the 2003 Fertility New Zealand Conference Judith Cameron presented a paper outlining the necessity of sensitive support systems within the National Women’s Hospital (NWH). At this time the NWH offered a follow up-call to all women who had presented miscarrying and was the only hospital in New Zealand to offer a free counselling service to all women and men who had experienced a miscarriage (Cameron, 2003). These practices have now been discontinued with the ADHB offering limited free counselling on request and no follow up call. A Miscarriage Support Auckland Inc. (Miscarriage Support Auckland) pamphlet is made available, although volunteer miscarriage support groups suggest that this pamphlet is not always offered (personal communication with Allan, 2009).
Middlemore Hospital currently offers a free counselling service to woman who have miscarried (personal communication with Underwood, 2009). If women do not wish to see a counsellor at that time a follow up call is made after discharge. In addition, all women who have miscarried receive a pamphlet entitled ‘Understanding Miscarriage’ which has a contact number for Miscarriage Support Auckland. The North Shore Hospital does not have a funded counselling service for women who have miscarried (personal communication with Cramond, 2008). Support, however, is offered to women who experience pregnancy loss within the hospital system and a follow-up call is provided to deal with initial feelings of loss and grief. Women seen within the Emergency Care System are only visited and/or contacted by one of the two social workers for women’s health if advised by the Medical/Surgical Social Work Team (personal communication with Cramond, 2008). These differing practices within the greater Auckland area highlight the lack of consistent protocol surrounding care of those who have miscarried.
A thorough online search of different databases that I conducted showed evidence of miscarriage support services having been implemented within some hospitals throughout Australia, the UK and Canada at different times. An overall picture of the current services offered within Australia, Canada and the UK is unavailable however, presumably as a result of the disjunct between different district health boards and jurisdictions.
Informal
A common feature within NZ, Australia and
the UK is the lack of funding for informal support groups. Miscarriage Support Auckland,
has chapters throughout the country and is the most referenced form
of support. This is provided by a group of female volunteers
who have experienced a miscarriage (Miscarriage Support Auckland
Inc., 2009). This support group is funded by donations and
grants and does not receive any direct government funding (personal
communication with Allan, 2009). A review of the major miscarriage
support groups in the UK and Australia highlights a similar lack
of funding, with the UK Miscarriage Association receiving only £10,000
of government funding (5% of their funds) (The Miscarriage Association,
2008); and Bonnie Babes in Australia receiving no government funding
despite the Howard government promising $800,000 AUS at the last
election (Macdonald, 2008).
In addition there are a multitude of web based support groups many with mediated online chat rooms (Layne, 2003a). These online communities have been found to offer greater ease of access to support, greater expertise and afford participants a forum where they may more easily express themselves (Walter and Boyd cited in Layne, 2003a).
Informal support may be received from friends and family of those who have miscarried. Studies have shown that this form of support may often be unhelpful, misguided or unavailable as a result of decreased family size and increased population mobility (Cote-Arsenault & Freije, 2004). For this reason, support groups provide a much needed service. In NZ, however, there are currently no state-funded support structures (Perinatal and Maternal Mortality Review Committee, 2007).
Employment
Miscarriage, for many, can be a time of grief and physical pain (Nanda
et al., 2007), the degree of which will depend on the individual’s
feelings of loss and the type of miscarriage experienced (whether
a D&C is required or invasive surgery for example). For
this reason, considerable time off work for recovery is often required
with a World Health Organisation study showing 21 days as the median
time taken by those who underwent medical or surgical management
of their miscarriage (Nanda et al., 2007).
Few countries offer specific maternity leave
to those who have miscarried. In
contrast, many countries, including New Zealand and the UK, offer paid
maternity leave to those who give birth to a stillborn baby (or equivalent
to 24 weeks gestation) (Department of Labour, 2009a; This highlights
the possible legal implications surrounding the medical definitions
of fetal viability.Directgov, 2009).
I was unable to find any information online in regards to Canadian
miscarriage support groups.
Within New Zealand, Section 12 of the Parental Leave Act 1987 allows for maternity leave of up to 14 weeks in the case of miscarriage provided the woman has applied 3 months prior to taking this leave (Department of Labour, 2009a). Maternity leave would therefore be near impossible to claim as the majority of women miscarry between 8-12 weeks gestation, and many women do not speak of their pregnancy until after the first trimester (Bansen & Stevens, 1992). Sick leave may be taken (Department of Labour, 2009a) if any of the employee’s allocation (of 5 days per year – based on minimum employment rights) remains (Department of Labour, 2009b). If an employee is eligible for bereavement leave, they may apply to take one day of this after a miscarriage, this will be given at the discretion of the employer if they believe a bereavement has occurred (Department of Labour, 2009a, 2009b). The lack of paid leave available to women who have miscarried may have implications, such as women returning to work before they are either physically or mentally able.
Under the Australian Fair Pay and Conditions Standard, women who miscarry are eligible to take special unpaid maternity leave for the duration specified by a medical certificate (Australian Government, 2009). Shared federal-provincial responsibility complicates the Canadian context. The Canada Labour Code covers those working within federal jurisdiction. This Code does not provide paid or unpaid maternity leave to those who have miscarried prior to 20 weeks gestation (Edmondson, 2007). Sick leave may however be applied for (up to a maximum of 15 weeks) through the Canadian Employment Insurance program if the employee is eligible (Service Canada, 2009). The basic benefit rate is set at 55% of your average insured earnings (up to a maximum of $447 Canadian per week) (Service Canada, 2009).
Policy Implications
As this review of the current support shows, services and support (both
financial and emotional) are limited within New Zealand and other
liberal countries. There is clearly a need for greater recognition
of the emotional and financial support required by those who have
experienced a miscarriage. The two major areas for policy implications
relate to hospital and medical care and government funding and protocol.
Hospital/medical care
The lack of hospital support may be seen
as a result of two things – the
decrease in funding of maternity services, and the lack of perceived
demand for such services. Within NZ (and other western countries)
there has been a substantial change in the age-structural demographic
with fertility rates decreasing and the ageing population increasing
(Stephenson & Scobie, 2002). This has led to a shift in hospital
funding away from maternity care and towards other programs (personal
communication with Cramond, 2008). DHBs in NZ have the responsibility
of managing resources and delivering services to best meet the needs
of communities (Glover, Hetzel, & Tennant, 2008); the Ministry
of Health states that this devolution will strengthen community ‘voice’ so
that “local people can have their voice heard in the planning
and delivery of services” and “empower communities to have
a greater say in determining their own health needs” (King, 2001,
iii). With the silence surrounding the miscarriage event however,
the support required may not be asked for by those who most need it
leading hospitals to mistakenly believe that there is a lack of demand
(Cameron, 2003). Further to this, the minimisation of miscarriage
by medical staff, and the gendered division of labour within hospitals
- which sees men predominantly within positions of power and decision
making, may add to the lack of demand from within (Hartigan, 2001;
National Coordinating Group on Health Care Reform and Women, 2003).
Research shows that improved hospital services within a humanistic environment are required. I argue that this could be achieved through the implementation of a nationwide maternity care protocol that outlines minimum standards of services – like that of the UK discussed above. This should enforce specific requirements such as follow-up care and services to be provided through Early Pregnancy Assessment Units (EPAU). Early Pregnancy Assessment Units are beneficial as they provide a place to go with specialised nurses who, following a miscarriage, can best serve a woman’s needs (Tsartsara & Johnson, 2002). A follow-up appointment after a miscarriage is also desirable. A recent study revealed 92% of survey participants desired this service, with 70% showing a significant reduction in psychological morbidity as a result of such care (Stratton & Lloyd, 2008). This appointment should address both medical and emotional issues, including reinforcing information regarding the cause of miscarriage (where possible), implications for future pregnancies, and an ongoing offer of grief counselling (Lee & Slade, 1996; Lok, 2007).
Employment contracts
Changes to employment contracts are required
to allow women to take time off work to recover both emotionally and
physically after a miscarriage. As shown by the WHO survey, women who had experienced
a miscarriage and received either medical or surgical care had a
median leave time from work of 21 days (Nanda et al., 2007). The
current maternity leave system in most countries is configured in
such a way that women may take maternity leave if their pregnancy
ends in still birth but not miscarriage. It is unclear whether
this differentiation in eligibility is as a result of the presumed
increase in trauma (physical or mental) incurred, or if there may
be some correlation with the medical conception of what is considered
a viable foetus (24 weeks). Regardless of the underlying justification,
it is clear that women require time to heal after a miscarriage and
the sick or bereavement leave available currently is insubstantial.
Government funding
In addition to changes in employment legislation and leave allocation,
government funding is required to assist groups such as Miscarriage
Support Auckland in NZ which provides support and information to
those who have miscarried. This form of community group allows
the empowerment of those who have experienced a miscarriage to support
others. Currently however this group receives no government
funding and as a result it is unable to provide the breadth of services
it would like (personal communication with Allan, 2009). Presently
the group runs an extensive website with resources for advice and
information about miscarriage and also pamphlets on how loved ones
may better acknowledge and offer support to friends and family (Miscarriage
Support Auckland Inc., 2009). This part of their service is
of importance with studies showing family and friends are often misguided
in the support they offer others.
Public awareness
Along with policy implications to improve the miscarriage experience
post-event, much can be done prior to conception and early in pregnancy. As
Allan (personal communication, 2008) and Layne (2003b) argue, the
miscarriage experience can be greatly influenced by information regarding
the prevalence and experience of miscarriage prior to experiencing
the event. Knowledge of the high chance of miscarriage has
been shown to decrease the elevated expectations for pregnancy outcomes
and thus decrease the emotional impact due to the shock of the occurrence
(Layne, 2003b). In addition greater education of both men and
women would allow for increased understanding and ability to support
others who have miscarried. For this reason I would argue for
the addition of miscarriage information within sex education classes
currently taught at high schools.
Conclusion
One in three NZ women will suffer a miscarriage, the experience of
which is socially and culturally situated. Major aspects that
influence the event include the medicalisation of pregnancy, minimal
hospital support services, zero funding for non-profit support services,
lack of public information on the occurrence of the event and no
financial provisions made within employment contracts for necessary
leave. That miscarriage as an event is still largely unacknowledged,
support under funded and often unavailable, speaks of the societal
and political lack of recognition of the event.
With the advent of technologies that allow earlier foetal bonding, the pregnancy narrative has changed. Women are inadvertently (or otherwise) encouraged in the creation of foetal personhood, however, when these pregnancies do not produce a live birth they are faced with an old narrative which does not allow for support of the prospective parents or the grieving of this socially created identity. As the age that women conceive increases the occurrence of miscarriage will in-turn increase, therefore, now more than ever, policy implications as outlined above are needed to improve miscarriage support in New Zealand.
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